Document Type

Article

Publication Date

2-2012

Keywords

ELSI, genetics, genomic research, plays, vignettes

Abstract

Ethical complexities surround the promise of genomic technology and the power of genetic information as they alter conceptions of identity and dynamics within personal and professional relationships. Creative approaches such as dramatic vignettes offer a unique analytical stage for imagining the bioethical past and future. Dramatic narratives can bring to life images of differing perspectives and values when experiencing innovations in medicine. Although the scientific landscape shifts, concerns expressed in theatre from 50 years ago parallel many contemporary ELSI (ethical, legal and social implications) issues, highlighting the ongoing struggle to appreciate the impact of emerging genetic technologies on relationships. To illuminate these enduring concerns, we explore how perceptions and relationships have influenced - and been influenced by - genetics as portrayed through dramatic vignettes. We build on the legacy of using case vignettes as a clinical teaching modality, and believe similar value exists within the research ethics domain. The selection of dialogue discussed encompasses abbreviated excerpts from two existing and one original vignette that we staged at the ELSI 2011 Congress and various academic and health institutions.

Journal

14 Genetics in Medicine 274 (2012).

Disciplines

Bioethics and Medical Ethics | Genetics | Genomics

Recommended Citation

14 Genetics in Medicine 274 (2012).

its not that simple.pdf (177 kB)
Genomic Research & the Consent Process. First in a series of ELSI plays and dramatic vignettes