Document Type
Article
Publication Date
2-2012
Keywords
ELSI, genetics, genomic research, plays, vignettes
Abstract
Ethical complexities surround the promise of genomic technology and the power of genetic information as they alter conceptions of identity and dynamics within personal and professional relationships. Creative approaches such as dramatic vignettes offer a unique analytical stage for imagining the bioethical past and future. Dramatic narratives can bring to life images of differing perspectives and values when experiencing innovations in medicine. Although the scientific landscape shifts, concerns expressed in theatre from 50 years ago parallel many contemporary ELSI (ethical, legal and social implications) issues, highlighting the ongoing struggle to appreciate the impact of emerging genetic technologies on relationships. To illuminate these enduring concerns, we explore how perceptions and relationships have influenced - and been influenced by - genetics as portrayed through dramatic vignettes. We build on the legacy of using case vignettes as a clinical teaching modality, and believe similar value exists within the research ethics domain. The selection of dialogue discussed encompasses abbreviated excerpts from two existing and one original vignette that we staged at the ELSI 2011 Congress and various academic and health institutions.
Publication Citation
14 Genetics in Medicine 274 (2012).
Disciplines
Bioethics and Medical Ethics | Genetics | Genomics
Digital Commons Citation
14 Genetics in Medicine 274 (2012).
Genomic Research & the Consent Process. First in a series of ELSI plays and dramatic vignettes